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Taking Action for ACD

Johnny Rista On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces....

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Mother’s Day: Celebrating Amazing Moms in the Rare Disease Community

Kristen Rilling is an amazing mom who, since losing her daughter, Fallon, has worked hard to help other families from experiencing what she and her family went through. Fallon was born on October 10,...

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